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Title: Holistic management of patients with progressive pulmonary fibrosis
Author: Oliveira, Ana
Fabbri, Gaia
Gille, Thomas
Bargagli, Elena
Duchemann, Boris
Evans, Rachel
Pinnock, Hilary
Holland, Anne E
Renzoni, Elisabetta
Ekström, Magnus
Jones, Steve
Wijsenbeek, Marlies
Dinh-Xuan, Anh Tuan
Vagheggini, Guido
Issue Date: Sep-2023
Publisher: European Respiratory Society
Abstract: Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.
Peer review: yes
DOI: 10.1183/20734735.0101-2023
ISSN: 1810-6838
Appears in Collections:IBIMED - Artigos
ESSUA - Artigos
Lab3R - Artigos

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