Please use this identifier to cite or link to this item: http://hdl.handle.net/10773/22117
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dc.contributor.authorCruz, Joanapt
dc.contributor.authorMarques, Aldapt
dc.contributor.authorMachado, Anapt
dc.contributor.authorO’Hoski, Sachipt
dc.contributor.authorGoldstein, Rogerpt
dc.contributor.authorBrooks, Dinapt
dc.date.accessioned2018-02-08T16:25:59Z-
dc.date.available2018-07-20T14:01:10Z-
dc.date.issued2017-05-06-
dc.identifier.issn0954-6111pt
dc.identifier.urihttp://hdl.handle.net/10773/22117-
dc.description.abstractIncreasing symptoms and activity restriction associated with COPD progression greatly impact on the lives of their informal caregivers, who play a vital role in maintaining their health. An understanding of this impact is important for clinicians to support caregivers and maintain a viable patient environment at home. This systematic review aimed to identify the instruments commonly used to assess informal caregiving in COPD and describe their measurement properties in this population. Methods Searches were conducted in PubMed, Scopus, Web of Science, CINAHL and PsycINFO and in references of key articles, until November 2016 (PROSPERO: CRD42016041401). Instruments used to assess the impact of COPD on caregivers were identified and their properties described. Quality of studies was rated using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist. Quality of the measurement properties of instruments was rated as ‘positive’, ‘negative’ or ‘indeterminate’. Results Patients cared for, had moderate to very severe COPD and the sample of caregivers ranged from 24 to 406. Thirty-five instruments were used in fifty studies to assess caregivers’ psychological status and mood (9 instruments), burden/distress (12 instruments), quality of life (5 instruments) or other (9 instruments). Eighteen studies assessed the measurement properties of 21 instruments, most commonly hypothesis testing (known validity) and internal consistency. Study quality varied from ‘poor’ to ‘fair’ and with many properties rated as ‘indeterminate’. Conclusions Although several instruments have been used to assess the impact of COPD on caregivers, an increased understanding of their properties is needed before their widespread implementation.pt
dc.language.isoengpt
dc.publisherElsevierpt
dc.rightsopenAccesspor
dc.subjectCaringpt
dc.subjectChronic obstructive pulmonary diseasept
dc.subjectFamilypt
dc.subjectMeasurept
dc.subjectPsychometric propertiespt
dc.subjectUnpaid caregiverspt
dc.titleInformal caregiving in COPD: a systematic review of instruments and their measurement propertiespt
dc.typearticlept
dc.peerreviewedyespt
ua.distributioninternationalpt
degois.publication.firstPage13pt
degois.publication.lastPage27pt
degois.publication.titleRespiratory Medicinept
degois.publication.volume128pt
dc.date.embargo2018-05-06T15:00:00Z-
dc.identifier.doi10.1016/j.rmed.2017.05.002pt
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